Your Child's Genetic Privacy — What You Need to Know About Data, Access, and Your Rights

Your child’s genetic information is unlike almost any other kind of medical data. It’s permanent — DNA doesn’t change — and it’s uniquely personal, touching not just your child but your entire family. Understanding how that information is protected, who can access it, and what choices remain in your hands is an essential part of the informed consent process.

Who can access your child’s results?

With GeneSprout, access to your child’s results is controlled by you. Results are delivered to a secure, HIPAA-compliant portal — accessible only to those you choose to share them with.

Importantly, GeneSprout results are not automatically part of your child’s medical record. They become part of the medical record only if you choose to share them with a healthcare provider. That decision is yours.

How is your child’s data protected?

GeneSprout applies rigorous data security standards to all genetic information. This includes:

• HIPAA-compliant storage — your child’s data is held to the same privacy standards as other protected health information
• Secure access controls — results are accessible only through an authenticated portal
• Transparent data practices — we are clear about what we do with your child’s data and do not share it without your knowledge and consent

What about research?

Some families choose to contribute de-identified genetic data to research — data that has been stripped of any information that could identify your child. Others prefer not to. Both are valid choices, and the decision belongs to you.

You will be informed clearly about any research data sharing options as part of the consent process, and you have the right to decline without affecting your access to testing or results.

What you choose to share is up to you

Genetic results can be relevant to family members — siblings, parents, grandparents — and some families choose to share findings with relatives who may benefit from the information. Others keep results private. There is no obligation either way.

GeneSprout does not share your child’s results with anyone without your explicit authorization. The information belongs to your family.

Your data rights at a glance

As a parent or legal guardian using GeneSprout, you have the right to:

• Know who can access your child’s results and how the data is stored
• Decline participation in any research data sharing
• Choose which healthcare providers, if any, receive your child’s results
• Have your child’s results remain outside their formal medical record unless you decide otherwise

Privacy as a foundation

At GeneSprout, privacy isn’t a policy afterthought — it’s foundational to how we operate. We believe that families can only make genuinely informed decisions when they trust that their child’s most sensitive information is in safe hands.

If you have specific questions about data practices, our Privacy Policy sets out the full details, and our support team is always available at hello@genesprout.com.

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This article is for informational purposes only and is not a substitute for professional medical advice. If you have concerns about your child’s health, speak with your pediatrician.